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Original Papers

Influence that specialized units of pediatric palliative care have on Primary Care pediatricians


Caballero Pérez Va, Rigal Andrés Mb, Beltrán García Sc, Parra Plantagenet-Whyte Fd, Moliner Robredo MCe, Gracia Torralba Lf, Orden Rueda Cg, Martino Alba RJh

aPediatra. CS Cella. Teruel. España.
bUnidad de Cuidados Paliativos Pediátricos. Hospital Niño Jesús. Madrid. España.
cPediatra. CS Valdespartera. Zaragoza. España.
dUnidad de Cuidados Paliativos Pediátricos. Hospital Infantil Miguel Servet. Zaragoza. España.
eAsesora técnica. Diputación General de Aragón. España.
fPediatra. CS Torre Ramona. Zaragoza. España.
gServicio de Pediatría. Hospital de Alcañiz. Zaragoza. España.
hUnidad de Cuidados Paliativos Pediátricos. Hospital Niño Jesús. Madrid. España.

Reference of this article.:

Caballero Pérez V, Rigal Andrés M, Beltrán García S, Parra Plantagenet-Whyte F, Moliner Robredo MC, Gracia Torralba L y cols. Influencia de los recursos especializados en cuidados paliativos pediátricos en los pediatras de Atención Primaria. Rev Pediatr Aten Primaria. 2018;20:133-42.

Published in Internet: 11/06/2018


Introduction: the role of Primary Care pediatricians in attending children with palliative needs is fundamental. The objective of the study is to understand the influence that specific units of pediatric palliative care have on the medical attention of children under the care of their Primary Care pediatricians.

Method: a cross-sectional study was carried out by sending an online survey to Primary Care pediatricians in the Spanish territory. We explored training needs and the desire of participants to be involved in palliative care.

Results: 202 responses were collected. 68% of participants had never received specific training in pediatric palliative care. In areas where pediatric palliative care resources exist, professionals showed a greater inclination toward participating in the activities of this discipline (mean 4.37 vs. 3.89, p = 0.104) and have had more opportunities to receive training on the subject (p = 0.007, OR: 2.18; CI 95: 1.24-3.84). If a pediatric palliative care unit was available by telephone 24 hours a day, the average number of potential activities they would participate in was much higher (p <0.001) (difference in means 4.28; CI 95: 3.92-4.65).

Conclusions: the existence of specific resources for pediatric palliative care with 24-hours telephone availability has a positive impact on the disposition of Primary Care pediatricians in participating in the treatment plans of patients with palliative care needs. In order to implement palliative care in this area, training programs must be strengthened.

Keywords: Surveys and questionnaires. Capacitación profesional. Pediatricians. Palliative care.



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ISSN 2174-4106  Publicación Open Acess, incluida en DOAJ, sin cargo por publicación.

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